188 top medical experts on primary familial and congenital Polycythemia across 18 countries and 7 U.S. states, including 23 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- primary familial and congenital Polycythemia: Primary familial and congenital polycythemia (PFCP) is an inherited blood disease that causes uncontrolled production of red blood cells (erythrocytes). This leads to an increased volume of red blood cells compared to the total blood volume (erythrocytosis). It may also lead to increased total blood volume or increased blood thickness (hyperviscosity), both of which can cause symptoms. The disease is present at birth, but symptoms (if they develop) may arise any time during childhood or adulthood. Possible symptoms may include headaches, dizziness, fatigue, nosebleeds, difficulty breathing after physical activity, muscle pain, a reddish complexion, and altered mental status. Some people develop blood clots that can block various blood vessels, preventing adequate blood flow (thromboembolic events). Most people have mild symptoms, but some people experience life-threatening complications such as heart attack or stroke.The risk of thrombosis and severe complications increases with age.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- National Blood Clot Alliance
8321 Old Courthouse Road
Suite 255
Vienna, VA 22182
Toll-free: 1-877-466-2568 (877-4NO-CLOT)
Telephone: +1-703-935-8845
E-mail: info@stoptheclot.org
Website: https://www.stoptheclot.org/
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Social Networking Websites
- Visit the following Facebook groups related to Primary familial and congenital polycythemia:
Familial, Congenital, Secondary, And Primary Polycythemia Support
Polycythemia, Secondary Polycythemia, Erythrocytosis Support. Not PV
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