202 top medical experts on Norrie disease across 19 countries and 6 U.S. states, including 39 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Norrie disease: A rare developmental defect during embryogenesis characterized by abnormal retinal development with congenital blindness. Common associated manifestations include sensorineural hearing loss and developmental delay, intellectual disability and/or behavioral disorders.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Norrie Disease Association
P.O. Box 3244
Munster, IN 46321
E-mail: joinnda@gmail.com
Website: http://www.norriedisease.org/
- Norrie Disease Foundation (NDF)
PO Box 12476
Colchester
CO1 9RB
United Kingdom
E-mail: enquiries@norriedisease.org.uk
Website: https://norriedisease.org.uk/
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Organizations Providing General Support
- American Foundation for the Blind
1401 South Clark Street
Suite 730
Arlington, VA 22202
Toll-free: 800-232-5463
Telephone: 212-502-7600
E-mail: info@aph.org
Website: https://www.afb.org/
- National Alliance for Eye and Vision Research (NAEVR)
5515 Security Lane
Suite 500
Rockville, MD 20852
Telephone: +1-240-221-2905
E-mail: jamesj@eyeresearch.org
Website: https://www.eyeresearch.org/
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