235 top medical experts on Jeune syndrome across 28 countries and 17 U.S. states, including 55 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Jeune syndrome: Jeune syndrome, also called asphyxiating thoracic dystrophy, is a short-rib dysplasia characterized by a narrow thorax, short limbs and radiological skeletal abnormalities including 'trident' aspect of the acetabula and metaphyseal changes.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Little People of America, Inc.
617 Broadway #518
Sonoma, CA 95476
Toll-free: 1-888-572-2001
Telephone: +1-714-368-3689
Fax: +1-707-721-1896
E-mail: info@lpaonline.org
Website: https://www.lpaonline.org/
- The MAGIC Foundation
4200 Cantera Dr. #106
Warrenville, IL 60555
Toll-free: 800-362-4423
Telephone: 630-836-8200
Fax: 630-836-8181
E-mail: contactus@magicfoundation.org
Website: https://www.magicfoundation.org/
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- Synonyms: Asphyxiating Thoracic Chondrodystrophy, Asphyxiating Thoracic Dysplasia, Asphyxiating Thoracic Dystrophy (ATD), Asphyxiating Thoracic Dystrophy 1, Asphyxiating thoracic dystrophy, Chondroectodermal dysplasia-like syndrome, Infantile thoracic dystrophy, Jeune Thoracic Dysplasia, Jeune Thoracic Dystrophy, Jeune's syndrome, Thoracic Asphyxiant Dystrophy, Thoracic pelvic phalangeal dystrophy, Thoracic-Pelvic-Phalangeal Dystrophy
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