16 top medical experts on Congenital facial diplegia across 4 countries, including 1 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Congenital facial diplegia: Moebius syndrome is a rare neurological condition that primarily affects the muscles that control facial expression and eye movement. Signs and symptoms of the condition may include weakness or paralysis of the facial muscles; feeding, swallowing, and choking problems; excessive drooling; crossed eyes ; lack of facial expression; eye sensitivity; high or cleft palate ; hearing problems; dental abnormalities; bone abnormalities in the hands and feet; and/or speech difficulties. Affected children often experience delayed development of motor skills (such as crawling and walking), although most eventually acquire these skills.Moebius syndrome is caused by the absence or underdevelopment of the 6th and 7th cranial nerves , which control eye movement and facial expression. Other cranial nerves may also be affected. There is no cure for Moebius syndrome, but proper care and treatment give many individuals a normal life expectancy.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Moebius Syndrome Foundation
PO Box 147
Pilot Grove, MO 65276
Toll-free: 1-844-663-2487
Telephone: 660-834-3406
E-mail: info@moebiussyndrome.org
Website: http://moebiussyndrome.org/
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Social Networking Websites
- RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).
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