259 top medical experts on Coffin-Siris syndrome across 35 countries and 28 U.S. states, including 51 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Coffin-Siris syndrome: A rare genetic syndromic intellectual disability characterized by aplasia or hypoplasia of the distal phalanx or nail of the fifth digit, developmental delay, coarse facial features, and other variable clinical manifestations.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Coffin-Siris Syndrome Foundation
11611 106th Ave NE
Kirkland, WA 98034
E-mail: coffinsiris@gmail.com
Website: https://www.coffinsiris.org/
- National Foundation for Ectodermal Dysplasias
6 Executive Drive
Suite 2
Fairview Heights, IL 62258-1360
Telephone: +1-618-566-2020
Fax: +1-618-566-4718
E-mail: info@nfed.org
Website: https://www.nfed.org/
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- Synonyms: Fifth digit syndrome, and distinctive facial features mental retardation hyperkeratosis Hypertrichosis
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