Find Expert Doctors on leuconychia and sensorineural deafness Knuckle pads10 top medical experts on leuconychia and sensorineural deafness Knuckle pads across 3 countries. This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- leuconychia and sensorineural deafness Knuckle pads: A rare, syndromic genetic deafness disease characterized by symmetric or asymmetirc knuckle pads (typically located on the distal and interphalangeal joints), leukonychia, diffuse palmoplantar keratoderma, and congenital, mild to moderate sensorineural deafness.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- American Society for Deaf Children (ASDC)
PO Box 23
Woodbine, MD 21797
Toll-free: 1-800-942-2732
E-mail: info@deafchildren.org
Website: http://deafchildren.org/
- Foundation for Ichthyosis and Related Skin Types (FIRST)
2616 North Broad Street
Colmar, PA 18915
Toll-free: 1-800-545-3286
Telephone: +1-215-997-9400
E-mail: info@firstskinfoundation.org
Website: http://www.firstskinfoundation.org/
- Hearing Loss Association of America
7910 Woodmont Avenue
Suite 1200
Bethesda, MD 20814
Telephone: +1-301-657-2248
E-mail: info@hearingloss.org
Website: https://www.hearingloss.org/
- National Association of the Deaf
8630 Fenton Street Suite 820
Silver Spring, MD 20910
Telephone: +1-301-587-1788
TTY: +1-301-587-1789
Fax: +1-301-587-1791
E-mail: NADinfo@nad.org
Website: https://www.nad.org/
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- Synonyms: Bart Pumphrey syndrome, Bart-Pumphrey Syndrome, and Sensorineural Deafness Leukonychia Knuckle Pads, and keratosis palmoplantaris deafness leukonychia Knuckle pads
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