200 top medical experts on congenital pulmonary Lymphangiectasia across 17 countries and 11 U.S. states, including 48 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- congenital pulmonary Lymphangiectasia: A rare developmental disorder involving the lung and characterized by pulmonary subpleural, interlobar, perivascular, and peribronchial lymphatic dilatation.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Lymphangiomatosis & Gorham's Disease Alliance
19919 Villa Lante Place
Boca Raton, FL 33434
Toll-free: 1-844-588-5771
Telephone: +1-561-441-9766
E-mail: info@lgdalliance.org
Website: https://www.lgdalliance.org
- Lymphatic Education and Research Network
154 West 14th Street
2nd Floor
New York, NY 10011
Telephone: +1-516-625-9675
E-mail: lern@lymphaticnetwork.org
Website: https://lymphaticnetwork.org/
- National Lymphedema Network (NLN)
411 Lafayette Street, 6th Floor
New York, NY 10003
Toll-free: +1- 646-722-7410
E-mail: nln@lymphnet.org
Website: http://www.lymphnet.org
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- Synonyms: Lymphangiectasia pulmonary congenital, pulmonary Lymphangiomatosis, Pulmonary cystic lymphangiectasis
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