92 top medical experts on congenital nonprogressive with Moebius and Robin sequences Myopathy across 11 countries and 8 U.S. states, including 13 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- congenital nonprogressive with Moebius and Robin sequences Myopathy: Carey-Fineman-Ziter (CFZ) syndrome is a rare condition characterized by the association of hypotonia, Moebius sequence (bilateral congenital facial palsy with impairment of ocular abduction), Pierre-Robin sequence (micrognathia, glossoptosis, and high-arched or cleft palate), unusual face, and growth delay.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- CFZsyndrome.org
P.O. Box 711645
Salt Lake City, UT 84171
E-mail: info@cfzsyndrome.org
Website: http://www.cfzsyndrome.org/
- Children's Craniofacial Association
13140 Coit Road Suite 517
Dallas, TX 75240
Toll-free: 1-800-535-3643
Telephone: +1-214-570-9099
Fax: +1-214-570-8811
E-mail: contactCCA@ccakids.com
Website: https://ccakids.org/
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- Synonyms: Carey Fineman Ziter syndrome, Carey-Fineman-Ziter Syndrome, Congenital nonprogressive myopathy with Moebius and Robin sequence, and hypotonia Robin complex Moebius sequence, with Moebius Sequence and Robin Sequence Congenital Nonprogressive Myopathy
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