6 top medical experts on Wittwer syndrome across 1 countries. This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Wittwer syndrome: Wolf-Hirschhorn syndrome (WHS) is a genetic disorder that affects many parts of the body. The major features include a characteristic facial appearance, delayed growth and development, intellectual disability , low muscle tone (hypotonia), and seizures . Other features may include skeletal abnormalities, congenital heart defects , hearing loss , urinary tract malformations, and/or structural brain abnormalities. WHS is caused by a missing piece (deletion) of genetic material near the end of the short (p) arm of chromosome 4 (written as 4p-). The size of the deletion varies among people with WHS, and studies suggest larger deletions tend to result in more severe features. Most cases of WHS are not inherited , but some cases are inherited from a parent who does not have WHS.Treatment depends on the symptoms.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- 4p- Support Group
131 Green Cook Road
Sunbury, OH 43074
E-mail: membership@4p-supportgroup.org
Website: http://www.4p-supportgroup.org/
- Chromosome Disorder Outreach (CDO)
PO Box 724
Boca Raton, FL 33429
Telephone: +1-561-395-4252
E-mail: https://chromodisorder.org/contact/
Website: https://chromodisorder.org/
- Unique – Rare Chromosome Disorder Support Group
G1, The Stables
Station Road West
Surrey
RH8 9EE
United Kingdom
Telephone: +44 (0)1883 723356
E-mail: info@rarechromo.org
Website: https://www.rarechromo.org/
- Wolf-Hirschhorn Syndrome Trust (UK)
Telephone: 0845-603-5338
E-mail: enquiries@whs4pminus.co.uk
Website: http://www.whs4pminus.co.uk/
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