208 top medical experts on Simpson-Golabi-Behmel syndrome across 31 countries and 9 U.S. states, including 29 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Simpson-Golabi-Behmel syndrome: A rare X-linked multiple congenital anomalies syndrome characterized by pre- and postnatal overgrowth, distinctive craniofacial features, variable congenital malformations, organomegaly and an increased tumor risk.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Children's Craniofacial Association
13140 Coit Road Suite 517
Dallas, TX 75240
Toll-free: 1-800-535-3643
Telephone: +1-214-570-9099
Fax: +1-214-570-8811
E-mail: contactCCA@ccakids.com
Website: https://ccakids.org/
- FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Toll-free: 800-332-2373
Telephone: 423-266-1632
E-mail: info@faces-cranio.org
Website: http://www.faces-cranio.org/
- World Craniofacial Foundation
7777 Forest Lane
Suite C-616
Dallas, TX 75230
Toll-free: 800-533-3315
Telephone: 972-566-6669
Fax: 972-566-3850
E-mail: info@worldcf.org
Website: http://www.worldcf.org/
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- Synonyms: Bulldog syndrome, X-linked Dysplasia gigantism syndrome, Golabi-Rosen syndrome, Mental Retardation-Overgrowth Syndrome, SGBS1, Simpson Dysplasia Syndrome, Simpson Syndrome, Simpson dysmorphia syndrome, Type 1 Simpson-Golabi-Behmel Syndrome
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