200 top medical experts on Roberts Syndrome across 21 countries and 9 U.S. states, including 30 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Roberts Syndrome: Roberts syndrome (RBS) is characterized by pre- and postnatal growth retardation, severe symmetric limb reduction defects, craniofacial anomalies and severe intellectual deficit. SC phocomelia is a milder form of RBS.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- American Hair Loss Association
23679 Calabasas Road # 682
Calabasas, CA 91301-1502
E-mail: info-ahla@americanhairloss.org
Website: http://americanhairloss.org
- Children's Craniofacial Association
13140 Coit Road Suite 517
Dallas, TX 75240
Toll-free: 1-800-535-3643
Telephone: +1-214-570-9099
Fax: +1-214-570-8811
E-mail: contactCCA@ccakids.com
Website: https://ccakids.org/
- FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Toll-free: 800-332-2373
Telephone: 423-266-1632
E-mail: info@faces-cranio.org
Website: http://www.faces-cranio.org/
- World Craniofacial Foundation
7777 Forest Lane
Suite C-616
Dallas, TX 75230
Toll-free: 800-533-3315
Telephone: 972-566-6669
Fax: 972-566-3850
E-mail: info@worldcf.org
Website: http://www.worldcf.org/
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- Synonyms: Appelt-Gerken-Lenz Syndrome, Hypomelia Hypotrichosis Facial Hemangioma Syndrome, Long bone deficiencies associated with cleft lip-palate, Pseudothalidomide Syndrome, Roberts-Sc Phocomelia Syndrome, Sc Phocomelia Syndrome, Sc Pseudothalidomide Syndrome, Sc Syndrome, Tetraphocomelia-Cleft Palate Syndrome
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