89 top medical experts on Ring Chromosome 20 Syndrome across 8 countries, including 3 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Ring Chromosome 20 Syndrome: A rare chromosomal disorder, characterized by childhood onset drug resistant epilepsy with typical electroencephalographic findings (EEG), mild to severe intellectual disability and behavioral problems.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Chromosome Disorder Outreach (CDO)
PO Box 724
Boca Raton, FL 33429
Telephone: +1-561-395-4252
E-mail: https://chromodisorder.org/contact/
Website: https://chromodisorder.org/
- Ring20 Research and Support UK
26 Headley Chase
Warley, Brentwood
Essex, CM14 5BN
United Kingdom
Telephone: +44 (0) 1708 403620
E-mail: ring20@ring20researchsupport.co.uk
Website: https://ring20researchsupport.co.uk/
- Unique – Rare Chromosome Disorder Support Group
G1, The Stables
Station Road West
Surrey
RH8 9EE
United Kingdom
Telephone: +44 (0)1883 723356
E-mail: info@rarechromo.org
Website: https://www.rarechromo.org/
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Organizations Providing General Support
- Epilepsy Foundation
3540 Crain Highway
Suite 675
Bowie, MD 20785
Toll-free: 800-332-1000 (24/7 Helpline)
Telephone: +1-301-459-3700
Fax: +1-301-577-2684
E-mail: contactus@efa.org
Website: https://www.epilepsy.com/
en Español 1-866-748-8008
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