117 top medical experts on Rigid spine syndrome across 14 countries and 1 U.S. states, including 11 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.

  1. Rigid spine syndrome: Rigid spine syndrome (RSS) is a slowly progressive childhood-onset congenital muscular dystrophy (see this term) characterized by contractures of the spinal extensor muscles associated with abnormal posture (limitation of neck and trunk flexure), progressive scoliosis of the spine, early marked cervico-axial muscle weakness with relatively preserved strength and function of the extremities and progressive respiratory insufficiency.
  2. Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
  3. Support Organizations

Organizations Providing General Support

  • Synonyms: Desmin-Related Myopathy With Mallory Bodies,  Desmin-related myopathies with Mallory bodies,  severe classic form Minicore myopathy,  severe classic form Multicore myopathy,  severe classic form Multiminicore disease,  Eichsfeld Type Congenital Muscular Dystrophy,  With Early Spine Rigidity Merosin-Positive Congenital Muscular Dystrophy,  merosin positive with early spine rigidity congenital Muscular dystrophy,  Sepn1-Related Myopathy,  Rigid Spine Muscular Dystrophy 1,  Rigid spine muscular dystrophy-1


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