222 top medical experts on Proteus Syndrome across 30 countries and 17 U.S. states, including 81 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.

  1. Proteus Syndrome: Hamartoneoplastic malformation syndrome of uncertain etiology characterized by partial gigantism of the hands and/or feet, asymmetry of the limbs, plantar hyperplasia, hemangiomas (hemangioma), lipomas (lipoma), lymphangiomas (lymphangioma), epidermal nevi; macrocephaly; cranial hyperostosis, and long-bone overgrowth. Joseph Merrick, the so-called "elephant man", apparently suffered from Proteus syndrome and not neurofibromatosis, a disorder with similar characteristics.
  2. Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
  3. Broader Categories (#Experts): Congenital Limb Deformities (1,074), Developmental Bone Diseases (4,620), Multiple Abnormalities (3,208), Multiple Hamartoma Syndrome (2,024).
  4. Clinical Trials ClinicalTrials.gov : at least 7 including 2 Completed, 3 Recruiting
  5. Synonyms: Elephant Man Disease


  

        

                    


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