Find Expert Doctors on Poikiloderma of Kindler206 top medical experts on Poikiloderma of Kindler across 26 countries and 6 U.S. states, including 16 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Poikiloderma of Kindler: A rare inherited epidermolysis bullosa (EB) characterized by skin fragility and blistering at birth followed by development of photosensitivity and progressive poikilodermatous skin changes.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Children's Skin Disease Foundation (CSDF)
1600 S. Main St
Suite 192B
Walnut Creek, CA 94596
Telephone: 925-947-3825
Fax: 866-236-6474
E-mail: ftenconi@csdf.org
Website: https://www.csdf.org/
- DebRA International
Am Heumarkt 27/3
1030 Vienna
Austria
Telephone: +43 1 876 40 30-0
Fax: +43 1 876 40 30-30
E-mail: office@debra-international.org
Website: http://www.debra-international.org/
- Epidermolysis Bullosa Center
The EB Center
Cincinnati Children's Hospital Medical Center
MLD 3004
3333 Burnet Avenue
Cincinnati, OH 45229-3039
Telephone: 513-636-2009
E-mail: ebcenter@cchmc.org
Website: https://www.cincinnatichildrens.org/service/e/epidermolysis-bullosa
- Epidermolysis Bullosa Medical Research Foundation (EBMRF)
2757 Anchor Ave
Los Angeles, CA 90064
Telephone: +1-310-205-5119
E-mail: a.pett@bep-la.com
Website: https://ebmrf.org/
- Genetic Skin Disease Center
Stanford Medical Dermatology Clinic
Stanford Medicine Outpatient Center
450 Broadway
Pavilion B, 4th Floor
Redwood City, CA 94063
Telephone: 650-723-6316
Fax: 650-725-7711
Website: http://dermatology.stanford.edu/contact/
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- Synonyms: Bullous acrokeratotic poikiloderma of kindler and weary, Congenital bullous poikiloderma, Kindler syndrome, weary type with bullae congenital Poikiloderma, hereditary acrokeratotic Poikiloderma
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