246 top medical experts on PHACE association across 30 countries and 26 U.S. states, including 136 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- PHACE association: PHACE is an acronym used to describe a syndrome characterised by the association of Posterior fossa brain malformations, large facial Haemangiomas, anatomical anomalies of the cerebral Arteries, aortic coarctation and other Cardiac anomalies, and Eye abnormalities. Sternal anomalies are also sometimes present, and in these cases the syndrome is referred to as PHACES. Two additional manifestations have recently been added to the clinical spectrum of PHACE syndrome: stenosis of the vessels at the base of the skull and segmental longitudinal dilations of the internal carotid artery.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- PHACE Syndrome Community
4514 Chamblee Dunwood Rd.
Suite 450
Atlanta, GA 30338
Telephone: 678-744-3971
E-mail: info@phacesyndromecommunity.org
Website: http://www.phacesyndromecommunity.org/
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Organizations Providing General Support
- National Organization of Vascular Anomalies (NOVA)
PO Box 38216
Greensboro, NC 27438-8216
E-mail: hall.karla.nova@gmail.com
Website: http://www.novanews.org
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