189 top medical experts on Orofaciodigital syndrome 6 across 16 countries and 5 U.S. states, including 12 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Orofaciodigital syndrome 6: Joubert syndrome with orofaciodigital defect (or oral-facial-digital syndrome type 6, OFD6) is a very rare subtype of Joubert syndrome and related disorders (JSRD, see this term) characterized by the neurological features of JS associated with orofacial anomalies and often polydactyly.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Joubert Syndrome & Related Disorders Foundation (JSRDF)
9 Dorenfeld CT
Petaluma, CA 94952
Telephone: +1-614-864-1362
E-mail: info@jsrdf.org
Website: https://jsrdf.org/
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- Synonyms: OFD6, OFDS VI, Type VI Oral-Facial-Digital Syndrome, type 6 Oral-facial-digital syndrome, Orofaciodigital Syndrome VI, and Psychomotor Retardation Cleft Lip-Palate or Lingual Lump Polydactyly, Varadi Papp syndrome, Varadi Syndrome, Varadi-Papp Syndrome
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