218 top medical experts on Myofibrillar Myopathy across 24 countries and 15 U.S. states, including 68 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Myofibrillar Myopathy: Myofibrillar myopathy (MFM) describes a group of skeletal and cardiac muscle disorders, defined by the disintegration of myofibrils and aggregation of degradation products into intracellular inclusions, and is typically clinically characterized by slowly-progressive muscle weakness, which initially involves the distal muscles, but is highly variable and that can affect the proximal muscles as well as the cardiac and respiratory muscles in some patients.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Cardiomyopathy Association
Chiltern Court
Asheridge Road
Unit 10
Chesham Buckinghamshire HP5 2PX
United Kingdom
Telephone: +44 01494 791 224
Fax: +44 1923 249 987
E-mail: contact@cardiomyopathy.org
Website: http://www.cardiomyopathy.org
- Children's Cardiomyopathy Foundation
P.O. Box 547
Tenafly, NJ 07670
Toll-free: 866-808-CURE (2873)
Fax: 201-227-7016
E-mail: info@childrenscardiomyopathy.org
Website: http://www.childrenscardiomyopathy.org/
-
Organizations Providing General Support
- Muscular Dystrophy Association (MDA)
222 S Riverside Plaza
Suite 1500
Chicago, IL 60606
Toll-free: 1-833-275-6321 (Helpline)
E-mail: resourcecenter@mdausa.org
Website: https://www.mda.org
Computing Expert Listing ...