204 top medical experts on Meier-Gorlin syndrome across 20 countries and 11 U.S. states, including 20 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Meier-Gorlin syndrome: A rare microcephalic primordial dwarfism characterized by the association of bilateral microtia (severe hypoplasia of ear pinnae), absent patellae, short stature and characteristic facial features such as high forehead, micrognathism with full lips and small mouth, and accentuated nasolabial folds (smile wrinkles linking the nostrils to the labial commissure).
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Hearing Loss Association of America
7910 Woodmont Avenue
Suite 1200
Bethesda, MD 20814
Telephone: +1-301-657-2248
E-mail: info@hearingloss.org
Website: https://www.hearingloss.org/
- Potentials Foundation
PO Box 34
Sandoval, IL 62882
E-mail: potentialsfoundation@gmail.com
Website: http://www.potentialsfoundation.org/
- Walking With Giants Foundation (WWGF)
PO BOX 85
Maghull
Liverpool
L31 6WW
England
Telephone: 0151 526 0134
Website: http://walkingwithgiants.org
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Organizations Providing General Support
- Human Growth Foundation
997 Glen Cove Avenue, Suite 5
Glen Head, NY 11545
Toll-free: 1-800-451-6434
Fax: 516-671-4055
E-mail: hgf1@hgfound.org
Website: http://www.hgfound.org/
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