200 top medical experts on Mcleod Type Neuroacanthocytosis across 21 countries and 10 U.S. states, including 16 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Mcleod Type Neuroacanthocytosis: McLeod neuroacanthocytosis syndrome (MLS) is a form of neuroacanthocytosis (see this term) and is characterized clinically by a Huntington's disease-like phenotype with an involuntary hyperkinetic movement disorder, psychiatric manifestations and cognitive alterations, and biochemically by absence of the Kx antigen and by weak expression of the Kell antigens.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Advocacy for Neuroacanthocytosis Patients
32 Launceston Place
London W8 5RN
England
Telephone: +44 (0) 20 7937 2938
E-mail: ginger@naadvocacy.org
Website: http://www.naadvocacy.org/
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Social Networking Websites
- RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).
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