Find Expert Doctors on Knobloch syndrome202 top medical experts on Knobloch syndrome across 20 countries and 10 U.S. states, including 34 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Knobloch syndrome: A rare systemic disorder characterized by vitreoretinal and macular degeneration, as well as occipital encephalocele.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Foundation Fighting Blindness
7168 Columbia Gateway Drive, Suite 100
Columbia, MD 21046
Toll-free: 1-800-683-5555
Telephone: +1-410-423-0600
TTY: 1-800-683-5551
E-mail: info@fightblindness.org
Website: https://www.fightingblindness.org/
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Social Networking Websites
- Visit the following Facebook groups related to Knobloch syndrome:
Humans with Knobloch Syndrome Resource & Support Group
Organizations Providing General Support
- National Alliance for Eye and Vision Research (NAEVR)
5515 Security Lane
Suite 500
Rockville, MD 20852
Telephone: +1-240-221-2905
E-mail: jamesj@eyeresearch.org
Website: https://www.eyeresearch.org/
- Retina International
Suite 108, Camden Business Centre
12 Camden Row
Dublin 8
Ireland
Telephone: +353 1 472 0468
E-mail: avril.daly@retina-International.org
Website: https://www.retina-international.org/
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