Find Expert Doctors on Infantile Hypophosphatasia119 top medical experts on Infantile Hypophosphatasia across 14 countries and 9 U.S. states, including 12 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Infantile Hypophosphatasia: A rare, severe, genetic form of hypophosphatasia (HPP) characterized by infantile rickets without elevated serum alkaline phosphatase (ALP) activity and a wide range of clinical manifestations due to hypomineralization.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Soft Bones Canada
PO Box 23520 Prairie Mall
Grande Prairie, AB
T8V 7G7
Canada
Telephone: 1-844-255-8477
E-mail: contactus@softbonescanada.ca
Website: http://softbonescanada.ca/
- Soft Bones Inc.
121 Hawkins Place #267
Boonton, NJ 07005
Toll-free: (866) 827-9937
Telephone: +1 (201) 317-1818
E-mail: info@softbones.org
Website: http://www.softbones.org
- The Avalon Foundation
Website: https://kidscaringforkids.org/
The Avalon Foundation provides emotional and educational support to families receiving care for hypophosphatasia.
- The MAGIC Foundation
4200 Cantera Dr. #106
Warrenville, IL 60555
Toll-free: 800-362-4423
Telephone: 630-836-8200
Fax: 630-836-8181
E-mail: contactus@magicfoundation.org
Website: https://www.magicfoundation.org/
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Social Networking Websites
- Visit the following Facebook groups related to Hypophosphatasia:
The Avalon Foundation
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