288 top medical experts on Hereditary leiomyomatosis and renal cell cancer across 30 countries and 20 U.S. states, including 146 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.

  1. Hereditary leiomyomatosis and renal cell cancer: Hereditary leiomyomatosis and renal cell cancer (HLRCC) is a hereditary cancer syndrome characterized by a predisposition to cutaneous and uterine leiomyomas and, in some families, to renal cell cancer.
  2. Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
  3. Support Organizations

    Social Networking Websites

    • RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).

    Organizations Providing General Support

  4. Synonyms: Cutaneous leiomyomata with uterine leiomyomata,  of skin hereditary multiple Leiomyoma,  multiple cutaneous Leiomyoma,  hereditary Leiomyomatosis and renal cell cancer,  Multiple cutaneous and uterine leiomyomata 1,  Multiple cutaneous and uterine leiomyomatosis,  Reed's syndrome


  

        

                    


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