222 top medical experts on Hereditary Diffuse Leukoencephalopathy with Spheroids across 21 countries and 13 U.S. states, including 52 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Hereditary Diffuse Leukoencephalopathy with Spheroids: Hereditary diffuse leukoencephalopathy with axonal spheroids and pigmented glia is a rare autosomal dominant disease characterized by a complex phenotype including progressive dementia, apraxia, apathy, impaired balance, parkinsonism, spasticity and epilepsy.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Alex The Leukodystrophy Charity (Alex TLC)
45 Peckham High Street
London, SE15 5EB United Kingdom
Telephone: 020 7701 4388
E-mail: info@alextlc.org
Website: https://www.alextlc.org
- United Leukodystrophy Foundation (ULF)
224 North Second Street
Suite 2
DeKalb, IL 60115
Toll-free: 1-800-728-5483
Telephone: +1-815-748-3211
Fax: +1-815-748-0844
E-mail: office@ulf.org
Website: https://ulf.org/
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- Synonyms: Adult-Onset Leukodystrophy with Neuroaxonal Spheroids, Autosomal Dominant Leukoencephalopathy with Neuroaxonal Spheroids, Neumann Type Familial Dementia, Familial Progressive Subcortical Gliosis, Hereditary Diffuse Leukoencephalopathy with Axonal Spheroids, Autosomal Dominant Leukoencephalopathy with Neuroaxonal Spheroids, With Spheroids Diffuse Hereditary Leukoencephalopathy, Neuroaxonal Leukodystrophy, Subcortical Gliosis of Neumann
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