210 top medical experts on Hepatorenal form of glycogen storage disease across 22 countries and 12 U.S. states, including 41 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Hepatorenal form of glycogen storage disease: Glycogenosis due to glucose-6-phosphatase deficiency (G6P) type a, or glycogen storage disease (GSD) type 1a, is a type of glycogenosis due to G6P deficiency (see this term).
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Association for Glycogen Storage Disease
1542 Flammang Dr.
PMB 1004
Waterloo, IA 50702
E-mail: info@agsdus.org
Website: https://www.agsdus.org/
- Association for Glycogen Storage Disease UK (AGSD-UK)
PO Box 1232
Bristol
BS48 9DD
United Kingdom
Telephone: 0300 123 2790
E-mail: https://agsd.org.uk/contact/message-us2/
Website: http://www.agsd.org.uk/
- Children's Fund for Glycogen Storage Disease Research, Inc.
20 Sherwood Lane
Cheshire, CT 06410
Telephone: 203-272-7744
E-mail: info@curegsd.org
Website: http://www.cureGSD.org
- Metabolic Support UK
5 Hilliards Court
Sandpiper Way
Chester Business Park
Chester, CH4 9QP United Kingdom
Toll-free: 0800 652 3181
Telephone: 0845 241 2173
E-mail: https://www.metabolicsupportuk.org/contact-us
Website: https://www.metabolicsupportuk.org
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Organizations Providing General Support
- American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
Toll-free: +1-800-465-4837 (Helpline)
Telephone: +1-212-668-1000
E-mail: https://liverfoundation.org/for-patients/contact-us/
Website: https://liverfoundation.org/
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