196 top medical experts on Hay-Wells syndrome across 18 countries and 8 U.S. states, including 28 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- ACPA Family Services
1504 East Franklin Street, Suite 102
Chapel Hill, NC 27514-2820
Telephone: +1-919-933-9044
Fax: +1-919-933-9604
E-mail: info@acpa-cpf.org
Website: https://cleftline.org/
- National Foundation for Ectodermal Dysplasias
6 Executive Drive
Suite 2
Fairview Heights, IL 62258-1360
Telephone: +1-618-566-2020
Fax: +1-618-566-4718
E-mail: info@nfed.org
Website: https://www.nfed.org/
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- Synonyms: Ankyloblepharon-Ectodermal Defects-Cleft Lip and Palate Syndrome, Ankyloblepharon-Ectodermal Defects-Cleft Lip-Cleft Palate, Hay Wells Syndrome Dominant Form
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