129 top medical experts on Gordon syndrome across 18 countries and 14 U.S. states, including 13 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Gordon syndrome: Gordon syndrome, also known as distal arthrogryposis type 3, is an extremely rare multiple congenital malformation syndrome characterized by congenital contractures of hand and feet with variable degrees of severity of camptodactyly, clubfoot and, less frequently, cleft palate. Intelligence is normal but in some cases, additional abnormalities, such as short stature, kyphoscoliosis, ptosis, micrognathia, and cryptorchidism may also be present. Gordon syndrome, Marden-Walker syndrome and arthrogryposis with oculomotor limitation and electroretinal anomalies clinically and genetically overlap, and could represent variable expressions of the same condition.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Arthrogryposis Multiplex Congenita Support Inc.
P.O. Box 6291
Spartanburg, SC 29304
Toll-free: 1-805-55-AMCSI (1-805-552-6274)
Telephone: +1-805-552-6274
E-mail: bod@amcsupport.org
Website: https://amcsupport.org
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Organizations Providing General Support
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS Information Clearinghouse)
One AMS Circle
Bethesda, MD 20892-3675
E-mail: NIAMSinfo@mail.nih.gov
Website: https://www.niams.nih.gov
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