Find Expert Doctors on Fibrolamellar hepatocellular carcinoma340 top medical experts on Fibrolamellar hepatocellular carcinoma across 35 countries and 25 U.S. states, including 235 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Fibrolamellar hepatocellular carcinoma: A rare variant of hepatocellular carcinoma (HCC) presenting in adolescents or young adults with no underlying liver disease. Clinical presentation is non specific, with abdominal mass, abdominal discomfort or pain, fatigue and weight loss. Patients can also be asymptomatic. HCC markers (alpha fetoprotein) are normal. Fibrolamellar HCC presents as a unique, well-delimited mass at imagery and a biopsy confirms the diagnosis, showing well-differentiated tumor cells surrounded by thick collagen bands.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Fibrolamellar Cancer Foundation
20 Horseneck Lane, 2nd Floor
Greenwich, CT 06830
Telephone: 203-862-3196
E-mail: lomalley@fibrofoundation.org
Website: http://www.fibrofoundation.org/
- The Max Burdette Fibrolamellar Cancer Research Foundation
9056 Stone Walk Place
Ste 246
Germantown, TN 38138
Telephone: (901) 842-9234
E-mail: christina@maxburdette.com
Website: http://www.maxburdette.com/threecolumn.html
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Organizations Providing General Support
- American Association for the Study of Liver Diseases
1001 North Fairfax, 4th floor
Alexandria, VA 22314
Telephone: 703–299–9766
Fax: 703–299–9622
E-mail: aasld@aasld.org
Website: http://www.aasld.org/
- American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
Toll-free: +1-800-465-4837 (Helpline)
Telephone: +1-212-668-1000
E-mail: https://liverfoundation.org/for-patients/contact-us/
Website: https://liverfoundation.org/
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