3 top medical experts on Familial primary biliary cirrhosis across 1 countries. This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Familial primary biliary cirrhosis: Primary biliary cholangitis (PBC) is a chronic, progressive liver disease in which the bile ducts become inflamed and damaged.This leads to the buildup of bile and causes liver problems such as scarring, cirrhosis (scarring and poor liver function), and eventual liver failure .PBC is more common in women.Many people do not have symptoms when they are first diagnosed and may not develop symptoms for several years.Early symptoms may include fatigue (the most common symptom), itchy skin (pruritus), and abdominal pain.As the disease progresses, people with PBC may develop weakness, nausea, diarrhea, swelling in the legs and feet (edema), bone and joint pain, jaundice , dark urine, and xanthomas .The symptoms of PBC can significantly impair quality of life.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- The PBC Foundation (UK) Ltd
2nd Floor
6 Hill Street
Edinburgh, EH2 3JZ United Kingdom
Telephone: + 44 (0) 131 556 6811
E-mail: info@pbcfoundation.org.uk
Website: https://www.pbcfoundation.org.uk/
- The PBCers Organization
1430 Garden Road
Pearland, TX 77581
Telephone: +1-346-302-1620
E-mail: pbcsite@pbcers.org
Website: https://pbcers.org/
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Organizations Providing General Support
- American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
Toll-free: +1-800-465-4837 (Helpline)
Telephone: +1-212-668-1000
E-mail: https://liverfoundation.org/for-patients/contact-us/
Website: https://liverfoundation.org/
- Autoimmune Association
19176 Hall Road, Suite 130
Clinton Township, MI 48038
Telephone: 586-776-3900
E-mail: hello@autoimmune.org
Website: https://autoimmune.org/
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