70 top medical experts on Epidermolysa bullosa simplex and limb girdle muscular dystrophy across 10 countries and 1 U.S. states, including 2 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.

  1. Epidermolysa bullosa simplex and limb girdle muscular dystrophy: A form of epidermolysis bullosa simplex (EBS) characterized by generalized blistering associated with muscular dystrophy.
  2. Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
  3. Support Organizations

Social Networking Websites

  • RareConnect is an online social network for patients and families to connect with one another and share their experience living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders). Click on the link above to view the community for Epidermolysis bullosa.
  • Synonyms: Epidermolysis Bullosa Simplex and Limb-Girdle Muscular Dystrophy,  Epidermolysis Bullosa Simplex with Muscular Dystrophy


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