Find Expert Doctors on Ectodermal Dysplasia-Skin Fragility Syndrome62 top medical experts on Ectodermal Dysplasia-Skin Fragility Syndrome across 9 countries and 1 U.S. states, including 3 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Ectodermal Dysplasia-Skin Fragility Syndrome: Epidermolysis bullosa simplex due to plakophilin deficiency (EBS-PD) is a suprabasal subtype of epidermolysis bullosa simplex (EBS, see this term) characterized by generalized superficial erosions and less commonly blistering.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Canadian Ectodermal Dysplasia Syndromes Association (CEDSA)
124 Lochiel Street
Ontario , K7V 1W7 Canada
Telephone: +1-613-432-9732
E-mail: meghan@ectodermaldysplasia.ca
Website: http://www.ectodermaldysplasia.ca/
- Epidermolysis Bullosa Medical Research Foundation (EBMRF)
2757 Anchor Ave
Los Angeles, CA 90064
Telephone: +1-310-205-5119
E-mail: a.pett@bep-la.com
Website: https://ebmrf.org/
- National Foundation for Ectodermal Dysplasias
6 Executive Drive
Suite 2
Fairview Heights, IL 62258-1360
Telephone: +1-618-566-2020
Fax: +1-618-566-4718
E-mail: info@nfed.org
Website: https://www.nfed.org/
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- Synonyms: Ectodermal dysplasia- skin fragility syndrome, Mcgrath syndrome
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