Find Expert Doctors on Craniofrontonasal dysplasia157 top medical experts on Craniofrontonasal dysplasia across 14 countries and 4 U.S. states, including 10 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Craniofrontonasal dysplasia: A rare X-linked malformation syndrome characterized by craniofacial abnormalities, grooved nails, intellectual disability and various skeletal and soft tissue abnormalities.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Children's Craniofacial Association
13140 Coit Road Suite 517
Dallas, TX 75240
Toll-free: 1-800-535-3643
Telephone: +1-214-570-9099
Fax: +1-214-570-8811
E-mail: contactCCA@ccakids.com
Website: https://ccakids.org/
- FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Toll-free: 800-332-2373
Telephone: 423-266-1632
E-mail: info@faces-cranio.org
Website: http://www.faces-cranio.org/
- Headlines Craniofacial Support
PO Box 13595
LINLITHGOW
EH49 9BD
United Kingdom
Telephone: +44 (0)7500 778965
E-mail: info@headlines.org.uk
Website: http://www.headlines.org.uk/
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- Synonyms: Craniofrontonasal dysostosis, Craniofrontonasal syndrome
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