Find Expert Doctors on Congenital contractural arachnodactyly201 top medical experts on Congenital contractural arachnodactyly across 23 countries and 5 U.S. states, including 26 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Congenital contractural arachnodactyly: Congenital contractural arachnodactyly (CCA, Beals syndrome) is a connective tissue disorder characterized by multiple flexion contractures, arachnodactyly, severe kyphoscoliosis, abnormal pinnae and muscular hypoplasia.
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- Support Organizations
- Genetic Aortic Disorders Association Canada (GADA Canada)
Centre Plaza Postal Outlet
128 Queen Street South
P.O. Box 42257
Mississauga Ontario L5M 4Z0
Canada
Toll-free: 866-722-1722
Telephone: 905-826-3223
Fax: 905-826-2125
E-mail: info@gadacanada.ca
Website: http://www.gadacanada.ca/
- Scoliosis Research Society (SRS)
555 East Wells Street, Suite 1100
Milwaukee, WI 53202-3823
Telephone: +1-414-289-9107
Fax: +1-414-276-3349
E-mail: info@srs.org
Website: https://www.srs.org/
- The Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Toll-free: 1-800-8-MARFAN (800-862-7326)
Telephone: +1-516-883-8712
Fax: +1-516-883-8040
E-mail: https://www.marfan.org/secure/ask
Website: https://www.marfan.org/
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- Synonyms: contractural Beals type Arachnodactyly, Type 9 Distal Arthrogryposis, Beals syndrome, Beals-Hecht syndrome, Congenital Contractural Arachnodactyly, multiple with arachnodactyly Contractures, Ear anomalies-contractures-dysplasia of bone with kyphoscoliosis
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