73 top medical experts on Childhood Hypophosphatasia across 9 countries and 8 U.S. states, including 8 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Childhood Hypophosphatasia: A rare, moderate form of hypophosphatasia (HPP) characterized by onset after six months of age and widely variable clinical features from low bone mineral density for age, to unexplained fractures, skeletal deformities, and rickets with short stature and waddling gait.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Metabolic Support UK
5 Hilliards Court
Sandpiper Way
Chester Business Park
Chester, CH4 9QP United Kingdom
Toll-free: 0800 652 3181
Telephone: 0845 241 2173
E-mail: https://www.metabolicsupportuk.org/contact-us
Website: https://www.metabolicsupportuk.org
- Soft Bones Canada
PO Box 23520 Prairie Mall
Grande Prairie, AB
T8V 7G7
Canada
Telephone: 1-844-255-8477
E-mail: contactus@softbonescanada.ca
Website: http://softbonescanada.ca/
- Soft Bones Inc.
121 Hawkins Place #267
Boonton, NJ 07005
Toll-free: (866) 827-9937
Telephone: +1 (201) 317-1818
E-mail: info@softbones.org
Website: http://www.softbones.org
- The Avalon Foundation
Website: https://kidscaringforkids.org/
The Avalon Foundation provides emotional and educational support to families receiving care for hypophosphatasia.
- The MAGIC Foundation
4200 Cantera Dr. #106
Warrenville, IL 60555
Toll-free: 800-362-4423
Telephone: 630-836-8200
Fax: 630-836-8181
E-mail: contactus@magicfoundation.org
Website: https://www.magicfoundation.org/
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Social Networking Websites
- Visit the following Facebook groups related to Childhood hypophosphatasia:
The Avalon Foundation
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