29 top medical experts on COACH syndrome across 4 countries and 3 U.S. states, including 3 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- COACH syndrome: Joubert syndrome with hepatic defect is a very rare subtype of Joubert syndrome and related disorders (JSRD, see this term) characterized by the neurological features of JS associated with congenital hepatic fibrosis (CHF).
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Joubert Syndrome & Related Disorders Foundation (JSRDF)
9 Dorenfeld CT
Petaluma, CA 94952
Telephone: +1-614-864-1362
E-mail: info@jsrdf.org
Website: https://jsrdf.org/
- Synonyms: And Hepatic Fibrosis Ocular Coloboma Congenital Ataxia Oligophrenia Cerebellar Vermis Hypo-Aplasia, and Hepatic fibrosis Coloboma Ataxia congenital Oligophrenia Cerebellar vermis hypo-aplasia
Computing Expert Listing ...
Find Expert Doctors on COACH syndrome