203 top medical experts on Adult Form Polyglucosan Body Disease across 13 countries and 7 U.S. states, including 32 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Adult Form Polyglucosan Body Disease: A glycogen storage disease of adults characterized by progressive upper and lower motor neuron dysfunction, progressive neurogenic bladder and cognitive difficulties that can lead to dementia.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- APBD Research Foundation
2257 East 63rd Street
Brooklyn, NY 11234
Telephone: 646-580-5610
E-mail: info@APBDRF.org
Website: http://www.apbdrf.org
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Organizations Providing General Support
- Alex The Leukodystrophy Charity (Alex TLC)
45 Peckham High Street
London, SE15 5EB United Kingdom
Telephone: 020 7701 4388
E-mail: info@alextlc.org
Website: https://www.alextlc.org
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