208 top medical experts on Adams Oliver syndrome across 29 countries and 16 U.S. states, including 36 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Adams Oliver syndrome: A rare disorder characterized by the combination of congenital limb abnormalities and scalp defects, often accompanied by skull ossification defects.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Adams Oliver Syndrome Support Group
14 College View
Connah's Quay
Deeside, Intl CH5 4BY
United Kingdom
Telephone: 01244 816209
E-mail: sandy.ivins@btinternet.com
- Ameriface
PO Box 751112
Las Vegas, NV 89136
Toll-free: 888-486-1209
Telephone: 702-769-9264
E-mail: info@ameriface.org
Website: http://www.ameriface.org
- Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Telephone: +1-407-895-0802
E-mail: staff@birthdefects.org
Website: https://www.birthdefects.org/
- FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Toll-free: 800-332-2373
Telephone: 423-266-1632
E-mail: info@faces-cranio.org
Website: http://www.faces-cranio.org/
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- Synonyms: and skull scalp Absence defect of limbs, Adams-Oliver syndrome, Adams-Oliver syndrome 1, Aplasia Cutis Congenita With Terminal Transverse Limb Defects, Aplasia cutis of the scalp, Congenital Scalp Defects With Distal Limb Reduction Anomalies, Congenital defect of skull and scalp, Familial aplasia cutis congenita of the scalp, Scalp and head syndrome, congenital Scalp defect, Scalp defects with ectrodactyly
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