29 top medical experts on 2-Methylbutyryl-CoA Dehydrogenase Deficiency across 4 countries and 1 U.S. states, including 2 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- 2-Methylbutyryl-CoA Dehydrogenase Deficiency: A rare organic aciduria characterized by impaired isoleucine degradation with increased plasma or whole blood C5 acylcarnitine levels (typically observed in newborn screening) and increased urinary excretion of N-methylbutyrylglycine. The condition is usually clinically asymptomatic, although patients with muscular hypotonia, developmental delay, and seizures (among others) have been reported.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- FOD (Fatty Oxidation Disorder) Family Support Group
P.O. Box 54
Okemos, MI 48805-0054
Telephone: +1-517-381-1940 [8am - 8pm EST every day]
Fax: +1-866-290-5206
E-mail: deb@fodsupport.org
Website: https://fodsupport.org/
- Organic Acidemia Association
9040 Duluth Street
Golden Valley, MN 55427
Telephone: 763-559-1797
Fax: 866-539-4060
E-mail: mkstagni@gmail.com
Website: http://www.oaanews.org/
- Save Babies Through Screening Foundation, Inc
P.O. Box 2313
Palm Harbor, FL 34682-2313
Toll-free: 888-454-3383
E-mail: email@savebabies.org
Website: http://www.savebabies.org
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- Synonyms: 2-MBCD Deficiency, 2-Methylbutyryl Glycinuria, 2-Methylbutyryl-Coenzyme A Dehydrogenase Deficiency, 2-ethylhydracylic aciduria, Elevated urinary 2-ethylhydracylic acid, Elevated urinary 2-methylbutyrylglycine, SBCADD, Short-Branched-Chain Acyl-CoA Dehydrogenase Deficiency
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