240 top medical experts on 16p11.2 Deletion Syndrome across 25 countries and 17 U.S. states, including 53 MDs (Physicians). This is based on an objective analysis of their Scientific Publications, Clinical Trials, Medicare, and NIH Grants.
- Clinical guidelines are the recommended starting point to understand initial steps and current protocols in any disease or procedure:
- Support Organizations
- Autism Society of America
4340 East-West Highway, Suite 350
Bethesda, MD 20814-3067
Toll-free: 800-328-8476
Telephone: 301-657-0881
E-mail: info@autism-society.org
Website: http://www.autism-society.org
- Autism Speaks
1 East 33rd St.
4th Floor
New York, NY 10016
Telephone: 212-252-8584
Fax: 212-252-8676
E-mail: contactus@autismspeaks.org
Website: http://www.autismspeaks.org
- Simons Searchlight
Toll-free: +1-855-329-5638
Fax: +1-570-214-7327
E-mail: coordinator@simonssearchlight.org
Website: https://www.simonssearchlight.org/
- Unique – Rare Chromosome Disorder Support Group
G1, The Stables
Station Road West
Surrey
RH8 9EE
United Kingdom
Telephone: +44 (0)1883 723356
E-mail: info@rarechromo.org
Website: https://www.rarechromo.org/
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Organizations Providing General Support
- American Association on Intellectual and Developmental Disabilities
8403 Colesville Road
Suite 900
Silver Spring, MD 20910
Telephone: (202) 387-1968
Fax: (202) 387-2193
Website: https://www.aaidd.org/
- The Society for Developmental and Behavioral Pediatrics
6728 Old McLean Village Drive
McLean, VA 22101
Telephone: 703-556-9222
E-mail: info@sdbp.org
Website: http://www.sdbp.org/index.cfm
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